My writing is never meant to insult or hurt anyone with Alzheimer’s. I am showing unedited honesty mixed with love. There will be many tears, frustration and even anger. Don’t worry, there is going to be a lot of laughter also. If you can’t find humor, you will only live with pain! I want everyone following us to walk away with a merry heart amidst the sorrow. (Proverbs 17:22) I will share it all from my eyes and the eyes of family and friends.
Homemade orange juice!
Yesterday (7/2/19) I got to join mom and her friends for dinner. Mom may struggle with language and memory, but her creative gene still rules! Mom had been given mandarin oranges for dessert (She is down to 115 lbs.and is sitting in the dining room where nurses closely monitor the amount of food she is eating. We do not want her loosing any more weight!). She decided orange juice would be better. She was not waiting for anyone to bring her some. Instead she mixed the oranges with her left over water and happily ‘drank’ every bite even after complaining that the oranges were ‘gross’!
Good to the very last drop!
Our dinner companions were fun in their own right! The lady to my right felt that shoes were not important! I tend to agree! ๐PS: The picture looks awful. Except for the toenail, her feet were fine. She was using her toes to scratch her bottom foot!
Shoes can be overrated!
After eating, mom enjoys walking. I took her outside for some fresh air. We sat down so I could show her pictures that her friends from all over the world have been sending (Thank you Patricia and Donna). Mom’s frustration in recognizing the ladies, but not being able to say their names became apparent. I turned the pictures off and took a selfie! Mom was much happier because she recognized herselfand kept saying, ‘That is me!”
Frustration in recognizing friends but not knowing their names!Happiness is recognizing herself in a photo!
Mom was relaxed and happy while on the boat. She began crying. I asked her what was wrong. She said they were happy tears!
Back in America
Mom and Ali arrived in Charleston, SC on June 7, 2019. It was her final destination and going to become her permanent home! Mom was wheeled into the airport looking frail, frazzled and exhausted! She was not making much sense as she tried to communicate except when I asked her if she knew who I was? Her snappy response, “Of course I do Lisa,” let me know I had insulted her! Maybe I shouldn’t have smiled, but I did! Mom was still there!
It has been two years since my sister and I had last seen mom (LeAnn). The decline in her memory and speech was shocking! Her husband had been in close contact with me. His honesty, along with my reading everything I could on Alzheimer’s, had my brain educated and prepared. Nothing could have prepared my heart!
The first night back in my home proved to be challenging. I knew the jet-lag, due to the 22 hour flight from Kuwait was playing havoc on mom’s mental state. Yet, I had to admit, there was more! Alzheimer’s was boldly introducing itself to me! Mom was agitated and kept wandering. The doors had to be monitored because she kept trying to escape! My 12 year old son asked me if he could sleep with his bedroom door locked because grandma kept barging in. That had not been her room for over 5 years, but that was the room she kept returning to! She took her frustrations out on me and Ali. (At one point she told me I was stupid!) Luckily, she had always been close with my husband, so Richard was able to provide her security.
Around 9 PM, mom was fed and ready for bed! To say I was relieved was an understatement! I needed peace and quiet to process the day! I know there will be good days mixed with bad days. Patience will be tested as tears flow! Alzheimer’s is robbing all of us of the wife, mom, daughter, sister, aunt and friend we once knew. One thing Alzheimer’s will not rob LeAnn of is the unconditional love surrounding her! She has a ‘village’ that extends worldwide! These friends and family embrace LeAnn, no matter her condition! This is not the journey I expected life to take us on, but God did! My Faith and trust are in Him, no matter the road ahead!
It was early morning. We were gathered around the ICU bed of a man I knew. He was a husband, dad and friend! The group consisted of 4 children (teenagers-adults), his mom, step-father, mother in law, wife (who is my best friend) and me. The nurses had exited after removing all life support. The room seemed to shrink as breaths were held, prayers whispered and tears flowed all while listening to the Holter Monitor beep.
The rhythmic beeps were trancelike. My thoughts were jumbled. The sound meant life, yet we all knew there was no longer a quality life. Dale’s organs had shut down. The bleeding on the brain had destroyed all functions. The fluids in his abdomen were full of toxins which caused his belly to swell to three times its size. The build-up of pressure was too much, causing the toxic fluid to burst out of his abdomen cavity into the rest of his body! These were the facts. Yet the beats of Dale’s heart were the sound of Hope. I know there is a God who can perform miracles humans cannot comprehend (Mathew 19:26) I believed this even as the beats slowed! I watched the monitor. The contrast between spikes and dips were no longer! The flat line sounded the alarm which was quickly unplugged! The silence became a deafening roar inside of me as I struggled with emotions I did not understand while holding the hand of my friend, while her other hand was firmly wrapped in in her husband’s hand as his heart beat one last time!
God’s love is profound! He proved this, by choosing not to wake Dale up in the hospital. Instead, He allowed Dale to wake up in His loving arms forever removed from illness, pain and hurt! Was God being selfish taking Dale for Himself, when Dale’s family is left in pain, grief and finishing life without a husband and dad? No! Faith gives me peace knowing that God’s course is better, even when hurt, anger and grief blind us to His loving plan (Ecclesiastes 3:1,11). I cannot tell you the plan, but I do know that this family has come together as a unit. The children, along with Michele, have shown strength that a few days ago, they never knew existed! God’s light has shone brightly through a community that came together embracing Michele in an outpouring of love and support! This love does not immediately eradicate the late night anger, fear and tears that are needed to begin the healing process, but it will act as a layer of protection hopefully taking away a little of the sting called grief!
Allowing your heart to see instead of your eyes will show you His love even in the darkest moments. That is what happened to Michele. After Dale had passed, while we were still standing in the room talking, crying and laughing over precious memories, Michele randomly asked where the white moth went? What a weird question I silently thought, or was it? As Michele talked about watching Dale during his transition from human life, a tiny white moth appeared. She kept trying to brush it away from her husband’s face but the moth lingered. I became intrigued since no one else witnessed a moth or any other critter in ICU. Later that night, when I was finally able to crawl into my bed, I googled the spirituality/symbolism of a white moth. There were thousands of entries on this subject (Who would have ever thought?) Some were dark while others were positive!) I only focused on the very first sentence I read. My tears flowed as I whispered my thanks for His gift to my beautiful friend. That first sentence stated that purity is seen in the color white, while a pure and cleansed soul is represented in a white moth! Michele physically saw God’s love with her eyes, because she looked with her heart! (Ephesians1:18)!
Welcome to my journal blog. As you read my entries, you will enter into the days I share with my husband, children, parents (understanding and living with my mom’s diagnosis of Alzheimer’s) dogs, family, friends and work. Through my writings you will experience my good, bad, challenging, exciting, frustrating, joyous, sad and angry. No matter the adjective used, when seen with your heart, there is always His love to experience. Find a comfy chair or location and join me on my journey called life!
The real voyage of discovery consists not in seeking new landscapes but in having new eyes. – Marcel Proust